tbh i never got formally diagnosed. personally im lucky enough not to have symptoms that require intervention. i kind of self treated the joint instability through weight lifting, which had a huge positive impact on my quality of life. i didnt even know i had it until earlier this year. at this point a diagnosis isnt worth pursuing, at least for me.
yeah the main thing for me is the excessive pain and wondering if i got a version that fucks with my heart. my dad and his mom both started having heart attacks and other issues in their 40s and that is less than a decade away for me. also i work manual labor so i was hoping to get even a small accomodation but thats not really possible without diagnosis. shit sucks!
yeah i keep forgetting about the possible heart issues… the thing that killed lindsey graham, an aortic direction, is apparently more common for us. my dad has a heart valve going bad, but no heart attacks in the family thankfully.
idk how any of us do manual labor. i always did sports which seemed ok, but any time i did some kind of manual labor i got some kind of overuse injury. got some bad tenis elbow from working in the meat department in a grocery store, and if i walk around too much my knees just fucking throb the rest of the day at least. shit definitely sucks.
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tbh i never got formally diagnosed. personally im lucky enough not to have symptoms that require intervention. i kind of self treated the joint instability through weight lifting, which had a huge positive impact on my quality of life. i didnt even know i had it until earlier this year. at this point a diagnosis isnt worth pursuing, at least for me.
yeah the main thing for me is the excessive pain and wondering if i got a version that fucks with my heart. my dad and his mom both started having heart attacks and other issues in their 40s and that is less than a decade away for me. also i work manual labor so i was hoping to get even a small accomodation but thats not really possible without diagnosis. shit sucks!
yeah i keep forgetting about the possible heart issues… the thing that killed lindsey graham, an aortic direction, is apparently more common for us. my dad has a heart valve going bad, but no heart attacks in the family thankfully.
idk how any of us do manual labor. i always did sports which seemed ok, but any time i did some kind of manual labor i got some kind of overuse injury. got some bad tenis elbow from working in the meat department in a grocery store, and if i walk around too much my knees just fucking throb the rest of the day at least. shit definitely sucks.
i definitely shouldnt be doing it, but it’s the only thing i can do for what it pays and i have medical expenses. lol